For anyone who cares to follow more closely, I have started a new blog relating to the life of my son Brian. He was born with Congenital Myasthenia Syndrome. I have been searching the web for others with is syndrome and found a few blogs.
Visit my other blog at www.lifewithcms.blogspot.com to follow his beginnings as I backtrack through is life and how far he has come.
I will keep the family happenings here, but the gritty details on Brian's upcoming surgery and past will be at that blog.
16 hours ago