For anyone who cares to follow more closely, I have started a new blog relating to the life of my son Brian. He was born with Congenital Myasthenia Syndrome. I have been searching the web for others with is syndrome and found a few blogs.
Visit my other blog at www.lifewithcms.blogspot.com to follow his beginnings as I backtrack through is life and how far he has come.
I will keep the family happenings here, but the gritty details on Brian's upcoming surgery and past will be at that blog.
Park City Utah
2 years ago
1 comment:
Been trying to leave you a message, think I finally got it. Anyway, would love to visit in person and catch up from the last 15yrs?? I have a more flexible life I think, so let me know if a time on a weekend is good. I live close. hope to hear from you! contact me at http://hazelwoodcentral.ning.com/profiles/profile/show?id=KellyPohl&
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